Archive for February, 2014

February 23, 2014

Shred it Forward

Sebastian James passed peacefully on February 14, 2014. He finished his earthly life as he lived all his days – a valiant, yet kind warrior.

In  honor of Sebby’s kindness, we would like to encourage his legacy of kindness. Please share your stories of compassion, kindness and love toward others on this blog. We have the privilege of living each day not only with awareness and presence but also the ability to be the change we want to see in the world. Random acts of compassion are a way to shred it forward to someone who may be experiencing challenges in their life. Sometimes, buying a cup of coffee for a stranger or sharing your place in line with someone who is ill can make a big difference in a day and indeed, a life.

We would like to thank the Skateboarding community for supporting Sebastian through his journey. Your acts of kindness toward Sebastian have inspired us to encourage others on their journey. Your heartfelt acts of leaving Sebastian positive thoughts inspired us to help keep his spirit alive.

Here is what you can do: Start thinking about acts of compassion and kindness, especially those compassionate acts that are anonymous. Many of you already do this on a daily basis. Please share your stories on the blog. We will be checking daily to do the administrative approvals!

Please visit  this blog in the very near future to download your template of The Sebastian James Project cards.

Thank you skateboarding community and THANK YOU SEBASTIAN!

The family of Sebastian (Sebby) Elijah James

February 16, 2014

Our Warrior Valentine Forever

Sebastian fought very hard for a very long time. He was admitted into the hospital a few weeks ago for increased levels of CMV (cytomegalovirus) in his body. He seemed to be responding well to treatment and was slated to go home in a few days. Overnight, he began losing the ability to oxygenate on his own and rapidly progressed from oxygen-assisted breathing in the evening to the need for intervention by morning. His father had spent the night with him. My husband and I, along with his mother joined him in the morning. We hoped it was for a few days until the doctors could figure out and treat whatever the problem was. Unfortunately, the test results showed extensive scar tissue in the alveoli of the lung, which was inhibiting his oxygen exchange. The damage is a result of chemotherapy, CMV and graft vs. host disease. The combination was just too much for his body to continue. He began to fail rapidly and his parents were faced with some very hard decisions in a very short period of time. His close friends and family were able to say goodbye. He was able to hear them although he was a bit groggy from pain medication and could not speak due to the ventilator. His little sister was able to come visit and make handprints together with him (with the assistance of a child life specialist). His great grandparents travelled from the Navajo reservation in northern Arizona arrived later in the evening to also say goodbye. After everyone had shared their love with him, the breathing tube – which he hated and wanted out – was removed. Sebastian was able to pass peacefully and surrounded by those who loved him dearly. Some of his favorite music was playing softly in the background as we wished him safe passage, told him we loved him and held him in our hands and arms. The look of peace on his body after he passed was remarkable and one I will never forget. He is absolutely at peace now. Our warrior was as brave as any gladiator ever known. We have been honored to have him in our lives for 18 years. His life had some hard times, but it was also filled with great moments as well. We will be sharing some of our favorites at a celebration of his life on Feb. 21st from 6:00 – 9:30 p.m. at The Boojum Tree in North Phoenix.