Day +156

It is hard to believe, but it has been over five months since Sebby’s BMT. He has enjoyed quite a bit of home life with a few short hospital stays. Mostly, he is battling the CMV virus. His doctors have been switching meds around in an effort to curtail it. Today he underwent another lung biopsy as well as once again enduring a bone marrow biopsy. He hates the lung biopsy more, I think. It will be days of dealing with a drain tube, which is very uncomfortable. But the doctors need to know what type of nodule is in his lung in order to treat it effectively. He initially went in the hospital this week to get infusions to fight the CMV. Preliminary tests show the levels to be reducing. We should have more definite results on Monday. While there, a CT scan showed Sebby to have a lung nodule and pneumonia in one lung. So here we are. These are pretty typical side effects of a bone marrow transplant. They have to be taken seriously and addressed immediately in order to prevent the situation from deteriorating. PCH doctors are good about getting the right diagnosis and the right medicine for the situation. Hopefully, he will be on the appropriate meds before I finish this blog page. Our warrior is still fighting!

Recently, Sebby was able to stand on his skateboard and coast a bit. His friend, Danny Green was hanging out with him and they both thought it would be a good place to start. I think so too!

 

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